National Partnership for Women & Families

Research Library: Health Information Technology (IT)

Doing some policy research? Need some background materials? You've come to the right place.

Note: Documents in the library are organized by issue area — and PDFs require Adobe Reader (free download/upgrade available).

 

 

Case Study: How is Health IT Beneficial for Consumers? Using health IT to help individuals be more active in their health care

Susan Crowson is a family caregiver from Maryland who is part of the Campaign for Better Care. She looks after her father, “Pop,” who has Alzheimer’s disease, heart arrhythmia, prostate problems, low blood platelets, and is highly susceptible to other infections.


Protecting Sensitive Health Information

Health information technology (HIT) provides opportunities to increase health care quality, efficiency, and access to services. But along with the promise of digital tools come concerns about privacy—especially when sensitive health information is involved.


Meaningful Use Incentive Program Structure

The HITECH Act provisions of the American Recovery and Reinvestment Act of 2009 (“ARRA”) established Medicare and Medicaid incentive payments to providers who are meaningful users of certified Electronic Health Record (EHR) technology.


Open Letter on Meaningful Use (April 2010)

As you craft the final criteria for meaningful use incentives, the consumer and employer communities wish to convey our strong belief that public funding used to incentivize provider adoption of HIT must result in improvements in the quality and affordability of care, not just the presence of technology in provider settings. The incentive program created by HITECH is a major investment that can help put in place the infrastructure necessary not just for better individual health care, but also for system-wide reform.


Proposed Stage 1 Meaningful Use Rule (March 2010)

The release of the Notice of Proposed Rulemaking (NPRM) for the Centers for Medicare and Medicaid Services' (CMS) incentive program for the Meaningful Use of electronic health records (EHRs) marks a major, positive step forward in the nation's efforts to improve health and health care by putting modern information technology (IT) tools at the fingertips of medical professionals and consumers alike.


Standards for EHRs (March 2010)

The Interim Final Rule (IFR) on health information technology (IT) standards marks a positive step forward in the nation's efforts to improve health care by putting modern IT tools at the fingertips of medical professionals and consumers alike.


Comments from Consumer and Patient Organizations on the Proposed Rule

The 21 undersigned organizations are members of the Consumer Partnership for e-Health (CPeH), a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology (HIT).


Defining Access to Information

The American Recovery and Reinvestment Act of 2009 (ARRA) contained significant public funding for health information technology (HIT) adoption. This expenditure of taxpayer money will be judged by the public based on whether their experience with the health care system is improved and whether it meets their needs more effectively as a result of this spending.


Breach Notification Requirement (October 2009)

The Consumer Partnership for e-Health (CPeH) is a coalition of consumer, patient and labor organizations working to achieve a patient-centered health care system, enabled by health information technology that facilitates shared knowledge and informed decisions. We believe that the successful adoption and use of health information technology will only occur if there is a solid foundation of privacy and security protections that help consumers trust that their personal information will not be inappropriately shared or used.


Health IT Policy Committee’s Meaningful Use Recommendation (June 2009)

The Consumer Partnership for e-Health is a coalition of consumer, patient and labor organizations working toward a patient-centered health care system enabled by health information technology. Transforming the health care delivery system from one centered on the needs of providers and payers, to a coordinated system of care that emphasizes active consumer participation and meaningful partnerships between patients and providers is foundational to health reform.


Regional Extension Centers (June 2009)

The Consumer Partnership for e-Health is a coalition of consumer, patient and labor organizations working toward a patient-centered health care system, enabled by health information technology and sharing of knowledge. Effective, meaningful use of HIT is an essential element of achieving the fundamental shift from a delivery system that is centered on the needs of providers and payers, to one that emphasizes active consumer participation and meaningful partnerships between patients and providers to support health improvement – a patient-centered health care system.


Consumer Principles for Health IT

An interoperable system of electronic health information holds many potential benefits for consumers, including: better coordination of health care regardless of patient location, higher quality and more efficient care, increased system transparency, and patient access to information about providers that allows them to make better decisions. At the same time, such a system raises serious concerns among consumers about personal privacy, data security, and the potential misuse of their information.


The Role of Consent in a Comprehensive Privacy and Security Strategy

Consumer consent has long been seen as the privacy pillar for networked health information. But a privacy approach that rests solely on obtaining consumer consent can provide weak protection for consumers.


10 Arguments You May Have Heard about the Meaningful Use Proposed Rule… And the Consumer Response

Congress provided a rare opportunity in the creation of the Meaningful Use (MU) incentive program to transform our health care system and truly improve the quality and efficiency of care for all Americans.


Meaningful Use of Health Information Technology: How is it Meaningful to Patients and their Families?

Susan Crowson is a family caregiver from Maryland who is part of the Campaign for Better Care. She looks after her father, “Pop,” who has Alzheimer’s disease, heart arrhythmia, prostate problems, low blood platelets, and is highly susceptible to other infections.


Consumer Vision for Health IT and Diagram (PDF)

As the nation begins to reform our health care system, it is clear that Health Information Technology (HIT) is a critical and foundational element for change. References to HIT were woven throughout the recently enacted health reform law as a foundational component of reforming the health care delivery and payment systems.


NEW: Meaningful Use Objectives and Measures, by Stage

The following chart depicts the new Meaningful Use Objectives and Measures, by Stage.


Principles for Patient Centered Care (Basis for Consumer Platform for Health IT)

As organizations representing a broad and diverse array of consumer interests, we believe that the following set of principles should guide the development and implementation of the medical home model of care.


Consumer Partnership for eHealth

CPeH amplifies the consumer voice to ensure that health IT initiatives and policies are implemented according to the needs of patients and families.


Using Health IT to Engage Patients in their Care: The Role of Providers in Implementing Online Access

The National Partnership for Women & Families conducted a series of eight interviews in the winter and spring of 2011 to learn about the experiences of physician pioneers in the use of patient portals. Those interviewed practice in Missouri, Massachusetts and Virginia, and the practice settings vary from large, integrated health systems to solo practitioners. Below is a summary of what we learned from those conversations.


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