National Partnership for Women & Families

Research Library: Health Information Technology (IT)

Doing some policy research? Need some background materials? You've come to the right place.

Note: Documents in the library are organized by issue area — and PDFs require Adobe Reader (free download/upgrade available).

 

 

Quality Measure Concept Prioritization (December 2010)

Thank you for the opportunity to comment on the measurement concepts prioritized by the HIT Policy Committee’s Quality Measures Workgroup. An essential step towards achieving the National Quality Strategy’s goals of improved health of the population, better experiences of care for patients and their families, and slowing of cost growth is the ability to measure the dimensions of quality contributing most significantly to these outcomes.


Personal Health Records and Emerging Technologies (December 2010)

We appreciate this opportunity to provide comment to the Office of the National Coordinator for Health IT (ONC) on Personal Health Records and related emerging technologies (collectively referred to here as “PHRs”). These comments are submitted on behalf of the Consumer Partnership for eHealth (CPeH), a coalition of national and local consumer, patient and labor organizations that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology.


Privacy & Security Concerns Related to Proposed Health Claims Data Warehouse (October 2010)

We are writing to express our concerns about the Health Claims Data Warehouse (the “Warehouse”) announced by the Office of Personnel Management (OPM) in the Federal Register on Oct. 5, 2010.


Modifications to the HIPAA Privacy Rule (September 2010)

The Center for Democracy and Technology (CDT), through its Health Privacy Project, promotes comprehensive privacy and security policies to protect health data as information technology is increasingly used to support the exchange of health information. CDT, along with those listed at the end of this letter, submits these comments in response to the July 7, 2010 notice of proposed rulemaking (NPRM) issued by the Dept. of Health and Human Services (HHS) Office of Civil Rights.


Accounting of Disclosures (May 2010)

The undersigned organizations are members of the Consumer Partnership for e-Health (CPeH), a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology (HIT). We submit these comments in response to the request for information (RFI) on the implementation of the modifications to the HIPAA Privacy Rule’s Accounting of Disclosures provisions required by Title XIII, Subtitle D of the American Recovery and Reinvestment Act of 2009 (ARRA).


Meaningful Use Thank You Letter

On behalf of the 56 undersigned consumer, labor union and employer organizations, we wish to express our sincere gratitude for the strong direction of the final meaningful use rule that was released by the Centers for Medicare & Medicaid Services (CMS) on July 13.


Meaningful Use Thank You to U.S. Dept of Health and Human Services Secretary Kathleen Sebelius and Dr. David Blumenthal

Dear Secretary Sebelius and Dr. Blumenthal: On behalf of the 56 undersigned consumer, labor union and employer organizations, we wish to express our sincere gratitude for the strong direction of the final meaningful use rule that was released by the Centers for Medicare & Medicaid Services (CMS) on July 13. We believe in the importance of crafting a definition – and subsequently an incentive program – that improves patient outcomes and provides value for our limited health care resources.


"Blue Button" Download Capability

Health information technology (health IT) provisions of the American Recovery and Reinvestment Act of 20091 (Recovery Act) set the expectation that individuals will be able to get electronic copies of pertinent health information about themselves.


Hearing on Efforts to Promote the Adoption and Meaningful Use of Health

Good afternoon Mr. Chairman, Congressman Herger, and distinguished members of the subcommittee. My name is Christine Bechtel and I am Vice President of the National Partnership for Women & Families. Just over a year ago, I was also appointed by the Government Accountability Office (GAO) to serve on the Health IT Policy Committee, where I represent the consumer perspective.


Hearing on Implementation of the HITECH Act

Good afternoon Mr. Chairman, Congressman Shimkus and members of the subcommittee. My name is Christine Bechtel and I am Vice President of the National Partnership for Women & Families. Just over a year ago, I was also appointed by the Government Accountability Office (GAO) to serve as a consumer representative on the Health IT Policy Committee.


Top 10 Consumer Benefits in Stage 1 Meaningful Use

On July 13, 2010 the Centers for Medicare & Medicaid Services (CMS) released a final rule detailing incentive payments for the meaningful use of certified Electronic Health Record (EHR) technology. With this rule, CMS has ensured that tax-payer-funded incentive payments do not simply go to digitizing paper records but to actually improving the quality of care.


Case Study: How is Health IT Beneficial for Consumers? Using health IT to help individuals be more active in their health care

Susan Crowson is a family caregiver from Maryland who is part of the Campaign for Better Care. She looks after her father, “Pop,” who has Alzheimer’s disease, heart arrhythmia, prostate problems, low blood platelets, and is highly susceptible to other infections.


Meaningful Use Incentive Program Structure

The HITECH Act provisions of the American Recovery and Reinvestment Act of 2009 (“ARRA”) established Medicare and Medicaid incentive payments to providers who are meaningful users of certified Electronic Health Record (EHR) technology.


Protecting Sensitive Health Information

Health information technology (HIT) provides opportunities to increase health care quality, efficiency, and access to services. But along with the promise of digital tools come concerns about privacy—especially when sensitive health information is involved.


Open Letter on Meaningful Use (April 2010)

As you craft the final criteria for meaningful use incentives, the consumer and employer communities wish to convey our strong belief that public funding used to incentivize provider adoption of HIT must result in improvements in the quality and affordability of care, not just the presence of technology in provider settings. The incentive program created by HITECH is a major investment that can help put in place the infrastructure necessary not just for better individual health care, but also for system-wide reform.


Proposed Stage 1 Meaningful Use Rule (March 2010)

The release of the Notice of Proposed Rulemaking (NPRM) for the Centers for Medicare and Medicaid Services' (CMS) incentive program for the Meaningful Use of electronic health records (EHRs) marks a major, positive step forward in the nation's efforts to improve health and health care by putting modern information technology (IT) tools at the fingertips of medical professionals and consumers alike.


Standards for EHRs (March 2010)

The Interim Final Rule (IFR) on health information technology (IT) standards marks a positive step forward in the nation's efforts to improve health care by putting modern IT tools at the fingertips of medical professionals and consumers alike.


Comments from Consumer and Patient Organizations on the Proposed Rule

The 21 undersigned organizations are members of the Consumer Partnership for e-Health (CPeH), a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology (HIT).


Defining Access to Information

The American Recovery and Reinvestment Act of 2009 (ARRA) contained significant public funding for health information technology (HIT) adoption. This expenditure of taxpayer money will be judged by the public based on whether their experience with the health care system is improved and whether it meets their needs more effectively as a result of this spending.


Breach Notification Requirement (October 2009)

The Consumer Partnership for e-Health (CPeH) is a coalition of consumer, patient and labor organizations working to achieve a patient-centered health care system, enabled by health information technology that facilitates shared knowledge and informed decisions. We believe that the successful adoption and use of health information technology will only occur if there is a solid foundation of privacy and security protections that help consumers trust that their personal information will not be inappropriately shared or used.


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