National Partnership for Women & Families

Research Library: Health Information Technology (IT)

Doing some policy research? Need some background materials? You've come to the right place.

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CPeH Comment Letter on CLIA Patient Record Access

CLIA Program and HIPAA Privacy Rule; Patients’ Access to Test Reports


HIT Glossary and Acronym List

The following is a glossary of Health Information Technology (IT) acronyms and terms.


What Do Consumers Stand to Gain (or Lose) from Health IT?

There has never been a greater need for consumers and consumer advocates to become involved in making sure that health IT actually meets their specific needs, such as providing easier access to and communication with their care team members, more coordinated care, and better access to the information they need to be more engaged in their own health. Advancing health IT adoption has become a major focus of the federal government and state and local governments across the nation.


Privacy Survey Topline Results


Organizations Endorsing the Consumer and Patient Principles for Electronic Health Information Exchange in California

Many organizations are working to ensure that electronic health information exchange in California fully incorporates the consumer's and patient's needs and perspectives.


Statement for the Subcommittee on Healthcare and Technology

Over the past several years, the National Partnership has led a diverse, non-partisan coalition of consumer, patient and labor organizations — the Consumer Partnership for e-Health (CPeH) — which works on behalf of patients and families to advance patient-centered, consumer-focused health IT.


Hearing: "Not What the Doctor Ordered: Barriers to Health IT for Small Medical Practices"

The National Partnership for Women & Families is a non-profit, non-partisan consumer organization with 40 years of experience working to make life better for women and families by promoting access to quality health care, fairness in the workplace, and policies that help women and men meet the dual demands of work and family. In my role as Vice President of the National Partnership, I also represent patients and families on the Health IT Policy Committee.


Consumer Platform for Health IT

Members of the Consumer Partnership for eHealth (CPeH) have been working for more than five years to advance patient-centered, consumer-focused health IT (information technology). We believe our nation is at a pivotal moment for transforming our health care system with the support of better information.


The Consumer Platform for Health IT

Members of the Consumer Partnership for eHealth (CPeH) have been working for more than five years to advance patient-centered, consumer-focused health IT (information technology).


Proposed Criteria for Stage 2 Meaningful Use (February 2011)

The undersigned consumer organizations are members of the Consumer Partnership for eHealth (CPeH) and the Campaign for Better Care (CBC). The CPeH is a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has advocated for patient-centered policies related to health IT.


Quality Measure Concept Prioritization (December 2010)

Thank you for the opportunity to comment on the measurement concepts prioritized by the HIT Policy Committee’s Quality Measures Workgroup. An essential step towards achieving the National Quality Strategy’s goals of improved health of the population, better experiences of care for patients and their families, and slowing of cost growth is the ability to measure the dimensions of quality contributing most significantly to these outcomes.


Personal Health Records and Emerging Technologies (December 2010)

We appreciate this opportunity to provide comment to the Office of the National Coordinator for Health IT (ONC) on Personal Health Records and related emerging technologies (collectively referred to here as “PHRs”). These comments are submitted on behalf of the Consumer Partnership for eHealth (CPeH), a coalition of national and local consumer, patient and labor organizations that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology.


Privacy & Security Concerns Related to Proposed Health Claims Data Warehouse (October 2010)

We are writing to express our concerns about the Health Claims Data Warehouse (the “Warehouse”) announced by the Office of Personnel Management (OPM) in the Federal Register on Oct. 5, 2010.


Modifications to the HIPAA Privacy Rule (September 2010)

The Center for Democracy and Technology (CDT), through its Health Privacy Project, promotes comprehensive privacy and security policies to protect health data as information technology is increasingly used to support the exchange of health information. CDT, along with those listed at the end of this letter, submits these comments in response to the July 7, 2010 notice of proposed rulemaking (NPRM) issued by the Dept. of Health and Human Services (HHS) Office of Civil Rights.


Accounting of Disclosures (May 2010)

The undersigned organizations are members of the Consumer Partnership for e-Health (CPeH), a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has served as a strong and diverse consumer voice advocating for patient-centered policies related to health information technology (HIT). We submit these comments in response to the request for information (RFI) on the implementation of the modifications to the HIPAA Privacy Rule’s Accounting of Disclosures provisions required by Title XIII, Subtitle D of the American Recovery and Reinvestment Act of 2009 (ARRA).


Meaningful Use Thank You Letter

On behalf of the 56 undersigned consumer, labor union and employer organizations, we wish to express our sincere gratitude for the strong direction of the final meaningful use rule that was released by the Centers for Medicare & Medicaid Services (CMS) on July 13.


"Blue Button" Download Capability

Health information technology (health IT) provisions of the American Recovery and Reinvestment Act of 20091 (Recovery Act) set the expectation that individuals will be able to get electronic copies of pertinent health information about themselves.


Hearing on Efforts to Promote the Adoption and Meaningful Use of Health

Good afternoon Mr. Chairman, Congressman Herger, and distinguished members of the subcommittee. My name is Christine Bechtel and I am Vice President of the National Partnership for Women & Families. Just over a year ago, I was also appointed by the Government Accountability Office (GAO) to serve on the Health IT Policy Committee, where I represent the consumer perspective.


Hearing on Implementation of the HITECH Act

Good afternoon Mr. Chairman, Congressman Shimkus and members of the subcommittee. My name is Christine Bechtel and I am Vice President of the National Partnership for Women & Families. Just over a year ago, I was also appointed by the Government Accountability Office (GAO) to serve as a consumer representative on the Health IT Policy Committee.


Top 10 Consumer Benefits in Stage 1 Meaningful Use

On July 13, 2010 the Centers for Medicare & Medicaid Services (CMS) released a final rule detailing incentive payments for the meaningful use of certified Electronic Health Record (EHR) technology. With this rule, CMS has ensured that tax-payer-funded incentive payments do not simply go to digitizing paper records but to actually improving the quality of care.


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