National Partnership for Women & Families

Research Library: Health Information Technology (IT)

Doing some policy research? Need some background materials? You've come to the right place.

Note: Documents in the library are organized by issue area — and PDFs require Adobe Reader (free download/upgrade available).

 

 

Consumer Partnership for eHealth & Campaign for Better Care Comments on Stage 2 Meaningful Use EHR Proposed Rule

We greatly appreciate this opportunity to comment on the Stage 2 Meaningful Use proposed rule. From the consumer perspective, health IT can be a critical enabler of safer, more effective and more reliable care, as well as greater consumer engagement in health – and, ultimately, more positive patient experiences and better health outcomes. The proposed rule specifying criteria for Stage 2 of the EHR Incentive Program makes significant advancements in the potential impact of the EHR Incentive program on individual and population-level health and health outcomes.


Health IT in the Affordable Care Act

Individual consumers are the ultimate payers of all health care - and health coverage - costs. Even workers in large businesses, whose employer contributes 100% of the insurance premium for the employee, understand that their wages are reduced to reflect the cost of health coverage offered through their employer.


Steps for Engaging Consumers

Ensuring substantive and meaningful consumer participation in a health IT initiative can help facilitate adoption of patient-centered innovations, and ultimately, speed and enhance the adoption of health IT in a community.


Steps for Achieving Meaningful Consumer Engagement in Health IT Initiatives

Ensuring substantive and meaningful consumer participation in a health IT initiative can help facilitate adoption of patient-centered innovations, and ultimately, speed and enhance the adoption of health IT in a community.


NEW: Survey Results and Meaningful Use Strategy Presentation

The effective implementation and use of health IT is absolutely essential for improving the quality and safety of health care.


Making IT Meaningful: Audio Press Briefing


Making IT Meaningful: Audio press briefing presentation slides


Executive Summary of National Partnership Survey "Making IT Meaningful: How Consumers Value and Trust Health IT"

The widespread adoption of health information technology (health IT) has become an urgent national priority. However, for the promise of health IT to be realized, consumers must both trust and value it.


Making IT Meaningful: How Consumers Value and Trust Health IT

As the nation progresses with the hard work of reforming the health care delivery system, the widespread adoption of health information technology (health IT) has become a national priority. A broad range of health care providers is working to implement and effectively use electronic health record (EHR) systems, which are essential to the success of new models of care currently being tested as a result of the Patient Protection and Affordable Care Act of 2009 (ACA).


CPeH Comment Letter on CLIA Patient Record Access

CLIA Program and HIPAA Privacy Rule; Patients’ Access to Test Reports


HIT Glossary and Acronym List

The following is a glossary of Health Information Technology (IT) acronyms and terms.


What Do Consumers Stand to Gain (or Lose) from Health IT?

There has never been a greater need for consumers and consumer advocates to become involved in making sure that health IT actually meets their specific needs, such as providing easier access to and communication with their care team members, more coordinated care, and better access to the information they need to be more engaged in their own health. Advancing health IT adoption has become a major focus of the federal government and state and local governments across the nation.


Privacy Survey Topline Results


Organizations Endorsing the Consumer and Patient Principles for Electronic Health Information Exchange in California

Many organizations are working to ensure that electronic health information exchange in California fully incorporates the consumer's and patient's needs and perspectives.


Hearing: "Not What the Doctor Ordered: Barriers to Health IT for Small Medical Practices"

The National Partnership for Women & Families is a non-profit, non-partisan consumer organization with 40 years of experience working to make life better for women and families by promoting access to quality health care, fairness in the workplace, and policies that help women and men meet the dual demands of work and family. In my role as Vice President of the National Partnership, I also represent patients and families on the Health IT Policy Committee.


Statement for the Subcommittee on Healthcare and Technology

Over the past several years, the National Partnership has led a diverse, non-partisan coalition of consumer, patient and labor organizations — the Consumer Partnership for e-Health (CPeH) — which works on behalf of patients and families to advance patient-centered, consumer-focused health IT.


Consumer Platform for Health IT

Members of the Consumer Partnership for eHealth (CPeH) have been working for more than five years to advance patient-centered, consumer-focused health IT (information technology). We believe our nation is at a pivotal moment for transforming our health care system with the support of better information.


The Consumer Platform for Health IT

Members of the Consumer Partnership for eHealth (CPeH) have been working for more than five years to advance patient-centered, consumer-focused health IT (information technology).


Proposed Criteria for Stage 2 Meaningful Use (February 2011)

The undersigned consumer organizations are members of the Consumer Partnership for eHealth (CPeH) and the Campaign for Better Care (CBC). The CPeH is a coalition of consumer, patient, and labor organizations working on both the national and local levels that, since 2005, has advocated for patient-centered policies related to health IT.


Quality Measure Concept Prioritization (December 2010)

Thank you for the opportunity to comment on the measurement concepts prioritized by the HIT Policy Committee’s Quality Measures Workgroup. An essential step towards achieving the National Quality Strategy’s goals of improved health of the population, better experiences of care for patients and their families, and slowing of cost growth is the ability to measure the dimensions of quality contributing most significantly to these outcomes.


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