Certainly doctors and other providers have an important role to play in helping patients understand and interpret their test results. This rule will not change that. But it will help patients access their information when they want and need to, ensure that their medical records are updated and accurate, and support them in being active and informed decision-makers in their care.
Right now, millions of patients do not get lab test results when they need them most. One oft-cited study found that patients were not informed of seven percent of abnormal test results. Another finds that eight to 20 percent of adults who were treated as outpatients did not receive their test results. That adds up to millions of patients without the information they need. We can do better.
Put simply, our nation will not be able to provide the high-quality, coordinated, patient-centered care that individuals and their family caregivers urgently need unless we make information more readily available to consumers and support their role in making informed decisions. This proposed rule is a major advancement for patients. It recognizes their right to their own health information. It can advance better care at lower cost. We commend the Department of Health & Human Services for issuing it."
The National Partnership for Women & Families is a nonprofit, nonpartisan advocacy group dedicated to promoting fairness in the workplace, access to quality health care and policies that help women and men meet the dual demands of work and family. More information is available at www.NationalPartnership.org.