Regardless of whether or not their physicians use EHRs or paper records, patients see significant value in EHRs, according to a study released Wednesday by the National Partnership for Women & Families.
“To date, the public discourse on health IT has largely focused on the views of doctors, hospitals and vendors,” said National Partnership President Debra L. Ness in a release. “It is crucial to hear what patients have to say about how they experience EHRs and health IT as they receive care and manage their health.”
In a third essay, Debra L. Ness, of the National Partnership for Women and Families, and Beverley H. Johnson, of the Institute for Patient- and Family-Centered Care, urge that end-of-life care be considered a partnership among patient, family, and medical team, a collaboration, more responsive as needs change. Insurers "must reimburse for social support as well as clinical care and must be flexible enough to evolve as care plans change," they write.
As of November, 16 cities and three states have paid sick leave ordinances, according to a report from the Philadelphia Mayor's Task Force on Paid Sick Leave. But some states are passing pre-emption laws that prohibit municipalities from establishing sick leave policies — up to 11 from 2011 through 2014, according to the National Partnership for Women and Families.
“There may be no truer test of a health-care system than how it supports persons with advanced illness or at the end of life and the loved ones who care for them. In that regard, most would agree that our health-care system struggles and often fails," said Debra L. Ness, president of the National Partnership for Women and Families, and Beverley H. Johnson, president of the Institute for Patient-and Family-Centered Care.
A recent study by the National Partnership for Women & Families found that many pregnant women are denied even the simplest accommodations, such as extra bathroom breaks.
“Every family in America has a stake in the outcome of this case,” said Judith L. Lichtman, a senior advisor to the National Partnership for Women and Families, which submitted a friend-of-the-court brief on behalf of 12 groups committed to maternal and fetal health.
There's still lots of room for improvement, as the map above from the National Partnership for Women & Families reveals: California gets an A- while Utah and Wyoming are among the 17 worst states for new parents and families.
"It's really tough to think, that in this day and age, when women are half the workforce, and so many families depend on their income, that women are still having to choose, and potentially, lose their job and lose their health insurance because they're pregnant," said Debra L. Ness, president of the National Partnership for Women and Families.
“Charlotte Burrows will make an outstanding EEOC commissioner, and David Lopez’s reappointment as general counsel is both wise and well deserved,” said Debra Ness, president of the National Partnership for Women & Families.
(Statistics provided by the National Partnership for Women & Families)
“Here we are at the end of 2014, talking about pregnancy discrimination, which we women’s rights advocates thought we had addressed and basically fixed in 1978,” says Judith Lichtman, senior adviser at the National Partnership of Women and Families.
"Access to one's own health information is a right guaranteed to all patients by HIPAA but it's not well understood, even within the provider community," says Erin Mackay, associate director of HIT programs for the National Partnership for Women & Families. "One of the great potentials for technology is the ability to put that information at the fingertips of patients — particularly as more individuals become caregivers to their children and, increasingly, to their parents as well."
According to a 2012 poll commissioned by the National Partnership for Women and Families, 86 percent of Americans support paid leave.
So what does patient engagement in research look like (question courtesy of the National Partnership for Women and Families)? PCORI responded with the following tweet: “Should engage early and often, but it is not one size fits all,” and then referenced their engagement rubric.
On Nov. 24, the Center for American Progress, the National Women’s Law Center and the National Partnership for Women & Families hosted a webinar on pregnancy job discrimination and Young v. UPS. Several experts, including Michele Jawando, Rachel Lyons, Diane Feldman and Emily Martin, discussed the case, the historical context of pregnancy discrimination and information on how to take action—and it’s clear that Young has already made a difference for pregnant workers.
“Oregon is entirely blue,” Vicki Shabo, vice president at the National Partnership for Women & Families, pointed out. “Paid sick days is something they’ve been working on for a long time.”
Last year, the National Partnership for Women and Families released findings that showed in South Carolina, on average, a woman who holds a full-time job is paid $31,330 per year while a man who holds a full-time job is paid $41,464 per year.
The National Partnership for Women and Families cautions that pregnancy-related counseling, prenatal care, midwifery services, enhanced coverage for high-risk pregnancies, labor and delivery services outside of a hospital setting and neonatal care may not be included in every plan.
The nonprofit National Partnership for Women and Families has pushed for paid sick time laws, which it considers “basic minimum protections that working families need, so they won’t have to lose a job or forfeit income when they have the flu or a family member is sick,” says Vicki Shabo, the organization’s vice president.
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