National Partnership for Women & Families

Consumer Resources

Highlights

Making IT Meaningful: How Consumers Value and Trust Health IT
The National Partnership and Professor Alan Westin, Ph.D., commissioned a study that, for the first time, details consumer perceptions of the value of and trust in electronic and paper medical record systems.

Consumer Principles for Health & Care Planning in an Electronic Environment
Consumers’ envision the next generation of care plans as a multidimensional, person-centered planning process built on a dynamic, electronic platform. The Consumer Partnership for eHealth developed a set of Consumer Principles to guide policy efforts to build the functionality to support health and care planning into health IT.

Leveraging Meaningful Use to Reduce Disparities: An Action Plan
Health information technology offers great promise in addressing and reducing health disparities, yet there has been little actual progress on this critical issue. The Consumer Partnership for eHealth has created an evidence-based action plan for leveraging the EHR Incentive Program to reduce health disparities and make a positive life-altering impact for the nation’s underserved and vulnerable populations.

Fundamentals of Patient- & Family-Centered Health IT

What Family Caregivers Need from Health IT
There are 93 million family caregivers today in the United States who will provide an estimated $522 billion in care for their loved ones. Family caregivers are the perfect audience to both use and influence the development of health information technology.

Top Ten Consumer Benefits of Health Information Technology
The Electronic Health Record (EHR) Incentive Program (e.g. “Meaningful Use”) is an essential catalyst for improving the quality, safety and efficiency of care. Patients and families have already begun to experience early benefits, which will grow exponentially in coming years.

Consumer Principles for Health IT
In 2006, CPeH drafted a set of Consumer Principles, based on the Markle Foundation’s Common Framework. These principles offer guidance for consumer-friendly development of electronic health information exchange networks.

Consumer Vision
If the benefits of health IT are to be fully realized, it must be designed and implemented in ways that improve health outcomes and directly benefit consumers, patients, and their families. To inform their work, CPeH articulated a Consumer Vision for what patient-centered care, enabled by health IT, would look like.

Steps for Achieving Meaningful Consumer Engagement in Health IT Initiatives
Ensuring substantive and meaningful consumer participation in a health IT initiative can help facilitate adoption of patient-centered innovations, and ultimately, speed and enhance the adoption of health IT in a community.

Consumer-Patient Principles for Electronic Health Information Exchange in California
Organizations Endorsing the Consumer and Patient Principles for Electronic Health Information Exchange in California

ACCESS to INFORMATION

Blue Button Fact Sheet
Blue Button is an easy, secure way to download your health data. Already, several federal agencies and many private organizations are using it. For consumers, gaining access to the health information necessary for our health and health care, and the tools to make that information useful, are key benefits of health information technology (health IT).

Using Health IT to Engage Patients in their Care: The Role of Providers in Implementing Online Access
The National Partnership for Women & Families conducted a series of eight interviews in the winter and spring of 2011 to learn about the experiences of physician pioneers in the use of patient portals. Those interviewed practice in Missouri, Massachusetts and Virginia, and the practice settings vary from large, integrated health systems to solo practitioners. Below is a summary of what we learned from those conversations.

Defining Access to Information
The American Recovery and Reinvestment Act of 2009 (ARRA) contained significant public funding for health information technology (HIT) adoption. This expenditure of taxpayer money will be judged by the public based on whether their experience with the health care system is improved and whether it meets their needs more effectively as a result of this spending.

Telemedicine: Improving Women’s Access to Health Care Through Innovation
Telemedicine is the delivery of any health care service or the transmission of health information using telecommunications technology. It includes videoconferencing, transmission of still images, patient portals, remote monitoring of vital signs, and more.

HITECH and Meaningful Use

Overview of Meaningful Use Incentive Program
The HITECH Act provisions of the American Recovery and Reinvestment Act of 2009 (“ARRA”) established Medicare and Medicaid incentive payments to providers who are ‘meaningful users’ of certified Electronic Health Record (EHR) technology.

Top 10 Consumer Benefits in Stage 1 Meaningful Use
The final rule for Stage 1 of Meaningful Use builds a foundation for meaningful changes in our health care system by promoting tangible advancements in quality, safety and value, including many direct benefits to patients and their caregivers.

Stage 2 Meaningful Use Summary and Analysis
Chart comparing the final rules for Stages 1 and 2 of the Meaningful Use incentive program.

Survey Results and Meaningful Use Strategy Presentation

PRIVACY & SECURITY

Protecting Sensitive Health Information in the Context of Health Information Technology
This issue brief lays out key factors to consider in protecting sensitive health information in an electronic context. It includes a discussion of the definition of sensitive health information, the implications of electronic information sharing, and the challenges of separating sensitive information from other types.

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