National Partnership for Women & Families

Blog Archive

From the desk of ... Megan O'Boyle, GetMyHealthData Tracer, Health IT

A Mother's Journey

Megan is the mother of a child with a rare genetic syndrome. Here, she shares her story of overcoming many obstacles – from high fees to puzzling policies and procedures – to get copies of her daughter’s medical records so she can better coordinate her care.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay

Troubleshooting Tracers’ Stories

We continue our Tracer Series this week by sharing common roadblocks Tracers have faced when they tried to get and use their health data.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay

A Tale of Two Tracers

This week, we’re kicking off our series of Tracer stories by sharing stories from two patients who requested their health data and reported back to us about their experiences.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay

Get Your Health Data in 2016: Become a Tracer

2016. This is it: the year I get my cholesterol under control. It’s not an easy New Year’s resolution, but it’s one I’m confident I can keep track of, in part because I have 24/7 access to my health records.

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From the desk of ... Debra L. Ness

The Wrong Way

Extremists in the House of Representatives seem to be firmly in charge as their fiscal year 2016 Labor, Health and Human Services, Education and Related Agencies (Labor-HHS) funding bill advances quickly.

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From the desk of ... Erin Mackay and Dena Mendelsohn, Health Policy Analyst, Consumers Union, Health IT

A Long Time Coming: Health Technology in the Hands of Patients

Did you know that you may already be able to access your digital health records from home? Harnessing the power of technology to improve health and care doesn’t have to be complicated; you don’t need the latest Fitbit, Apple Watch or GoogleGlass for technology to make an impact on your life.

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Erin Mackay, Associate Director, Health Information Technology Programs

Health IT

No Meaningful Use (MU) Without Me: The Power of Consumer Voices

As you know, at the National Partnership for Women & Families, we strongly believe health IT is a real game-changer for patients, helping them take charge of their health and become true partners in improving our health care system.

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From the desk of ... MaryAnne Sterling, member of the Consumer Partnership for eHealth and co-founder of Connected Health Resources, Health IT

Building Better Health IT Tools for Family Caregivers

As we become immersed in the sights and sounds of the holiday season, there is a largely invisible group of people struggling to balance their daily responsibilities with the added stress of the holidays – family caregivers.

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From the desk of ... Debra L. Ness

Your Health Information: Get It, Check It, Use It.

It’s ushering in a new era in health care, with major benefits for women, caregivers, consumers and families.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay, Health IT

How Do I Get to Healthy?

What if, instead of plugging in your destination address, you could ask for directions to get to healthy?

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From the desk of ... Debra L. Ness

Realizing the Value of Health IT: Jumpstarting Efforts to Reduce Health Disparities

Health disparities and health information technology (IT). Those two issues aren’t linked very often, but they should be, and National Health IT Week presents a great opportunity to talk about why. Health information technology is a valuable tool we can use to reduce disparities for millions of Americans and improve the quality of health care.  

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay, Health IT

"Meaningful Use" of Health IT: What the FACA?!

What happens when you put a couple of dozen doctors, technology vendors, consumer advocates, researchers, public health officials, state legislators and others in a room and ask them to agree on exactly what it means to ‘meaningfully use’ electronic health records? Not as many fights as you’d think. And thanks to the Federal Advisory Committees Act [1] – which created the FACAs responsible for creating the first draft of Meaningful Use criteria – we know!

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Erin Mackay, Associate Director, Health Information Technology Programs

Health IT, From the desk of ... Erin Mackay

An Opportunity to Reduce Health Disparities that We Cannot Afford to Waste

One of America’s greatest assets is its incredible diversity. Today, one in five people in this country age five and older speak a language other than English at home. The U.S. Hispanic population has reached 50.5 million, accounting for more than half of the population increase since 2000.

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Mark Savage, Director of Health Information Technology Policy and Programs

From the desk of ... Mark Savage, Health IT

Moving Forward on Health IT

Delay access to health information you need now?  Pause efforts to ensure that an emergency room can get your medical data from your doctor immediately, if the need arises?  Patients and consumers say no.

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Elina Alterman, Health Information Technology Policy and Outreach Coordinator

From the desk of ... Elina Alterman, Health IT

Why Health IT is Truly the Cat's Meow

Those of us who work in the health IT world spend our days analyzing policies, creating advocacy strategies, and talking about meaningful use criteria, quality improvement, and care coordination till we're blue in the face. But how does that play out when we leave the office? More often than not, we bring our work home.

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Elina Alterman, Health Information Technology Policy and Outreach Coordinator

From the desk of ... Elina Alterman, Health IT

Meaningful Use March Madness: SO/GI or Bust!

Welcome to the final installment of Meaningful Use March Madness, a series of blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay, Health IT

Meaningful Use March Madness: Keep Up the Pace

Welcome to Meaningful Use March Madness, a series of blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program.

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Erin Mackay, Associate Director, Health Information Technology Programs

From the desk of ... Erin Mackay, Health IT

Meaningful Use March Madness

Welcome to Meaningful Use March Madness, a month of weekly blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program. Stay tuned all month!

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From the desk of ... Arian Hull, Health IT

"A Health Exchange of One"

As an intern at the National Partnership for Women & Families (NPWF) and rising 2nd year law student, the hearing on Patient Generated Health Data (PGHD) provided eye-opening exposure to the need for patients to be active participants in every aspect of their care.

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From the desk of ... Eva Powell, Health IT

How do Consumers View Health IT?

We are so excited to be able to share with you the results of an unprecedented study, commissioned to examine consumer views on health IT!

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