Megan is the mother of a child with a rare genetic syndrome. Here, she shares her story of overcoming many obstacles – from high fees to puzzling policies and procedures – to get copies of her daughter’s medical records so she can better coordinate her care.
We continue our Tracer Series this week by sharing common roadblocks Tracers have faced when they tried to get and use their health data.
This week, we’re kicking off our series of Tracer stories by sharing stories from two patients who requested their health data and reported back to us about their experiences.
2016. This is it: the year I get my cholesterol under control. It’s not an easy New Year’s resolution, but it’s one I’m confident I can keep track of, in part because I have 24/7 access to my health records.
Extremists in the House of Representatives seem to be firmly in charge as their fiscal year 2016 Labor, Health and Human Services, Education and Related Agencies (Labor-HHS) funding bill advances quickly.
Did you know that you may already be able to access your digital health records from home? Harnessing the power of technology to improve health and care doesn’t have to be complicated; you don’t need the latest Fitbit, Apple Watch or GoogleGlass for technology to make an impact on your life.
As you know, at the National Partnership for Women & Families, we strongly believe health IT is a real game-changer for patients, helping them take charge of their health and become true partners in improving our health care system.
As we become immersed in the sights and sounds of the holiday season, there is a largely invisible group of people struggling to balance their daily responsibilities with the added stress of the holidays – family caregivers.
It’s ushering in a new era in health care, with major benefits for women, caregivers, consumers and families.
What if, instead of plugging in your destination address, you could ask for directions to get to healthy?
Health disparities and health information technology (IT). Those two issues aren’t linked very often, but they should be, and National Health IT Week presents a great opportunity to talk about why. Health information technology is a valuable tool we can use to reduce disparities for millions of Americans and improve the quality of health care.
What happens when you put a couple of dozen doctors, technology vendors, consumer advocates, researchers, public health officials, state legislators and others in a room and ask them to agree on exactly what it means to ‘meaningfully use’ electronic health records? Not as many fights as you’d think. And thanks to the Federal Advisory Committees Act  – which created the FACAs responsible for creating the first draft of Meaningful Use criteria – we know!
One of America’s greatest assets is its incredible diversity. Today, one in five people in this country age five and older speak a language other than English at home. The U.S. Hispanic population has reached 50.5 million, accounting for more than half of the population increase since 2000.
Delay access to health information you need now? Pause efforts to ensure that an emergency room can get your medical data from your doctor immediately, if the need arises? Patients and consumers say no.
Those of us who work in the health IT world spend our days analyzing policies, creating advocacy strategies, and talking about meaningful use criteria, quality improvement, and care coordination till we're blue in the face. But how does that play out when we leave the office? More often than not, we bring our work home.
Welcome to the final installment of Meaningful Use March Madness, a series of blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program.
Welcome to Meaningful Use March Madness, a series of blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program.
Welcome to Meaningful Use March Madness, a month of weekly blog posts refuting frequently-heard arguments about the criteria proposed for the Electronic Health Record “Meaningful Use” Incentive Program. Stay tuned all month!
As an intern at the National Partnership for Women & Families (NPWF) and rising 2nd year law student, the hearing on Patient Generated Health Data (PGHD) provided eye-opening exposure to the need for patients to be active participants in every aspect of their care.
We are so excited to be able to share with you the results of an unprecedented study, commissioned to examine consumer views on health IT!
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